EDS Links

Ehlers-Danlos National Foundation
The Ehlers-Danlos National Foundation (EDNF) was founded in 1985 by Nancy Hanna Rogowski. EDNF creates resources for those affected by the connective tissue disorder Ehlers-Danlos Syndrome. They create and distribute accurate information, provide a network of support and communication, and foster and fund research.

Ann Arbor EDNF
Local group based in Ann Arbor, Michigan (west of Detroit MI / north of Toledo OH)

Overviews of Ehlers-Danlos Syndrome (EDS)

from Ehlers-Danlos National Foundation, USA:
What is EDS?
Types of EDS

from Ehlers-Danlos Support Group, UK:
What is EDS?
Types of EDS

from Ehlers-Danlos Syndrome Network, USA:
What is EDS?
Types of EDS
Causes & Symptoms

from EDS Today, USA:
Types of EDS
Understanding Genetics

from Canadian Ehlers-Danlos Association:
What is EDS?
Types of EDS
The Facts About EDS

Comprehensive Medical Reviews of EDS Types
Summary, Diagnosis, Clinical Description, Management, Genetics, etc.

Ehlers-Danlos Syndrome, Classic Type
by Richard Wenstrup, MD, & Anne De Paepe, MD, PhD

Ehlers-Danlos Syndrome, Hypermobility Type
by Howard P Levy, MD, PhD

Ehlers-Danlos Syndrome, Vascular Type
by Melanie G Pepin, MS, CGC, & Peter H Byers, MD

Ehlers-Danlos Syndrome, Kyphoscoliotic Form
by Heather N Yeowell, PhD, & Beat Steinmann, MD

Additional Information About EDS

from Ehlers-Danlos National Foundation, USA:
Dealing with Doctor/Patient Relationships

from Ehlers-Danlos Support Group, UK:
Visiting a Geneticist
Pain Control
Coping with Daily Activities
Special Education Needs

from Ehlers-Danlos Syndrome Network, USA:
Myths & Facts
Coping & Support / Help Your Child Cope

from EDS Today, USA:
Assistive Services

from Canadian Ehlers-Danlos Association:
Information Page
The Seven Stages of Acceptance

Medical Devices

Silver Ring Splint Company
Attractive splints, designed to effectively control hyperextension and support instability of finger joints in patients with EDS, arthritis, and other chronic conditions.
 

EZ Chair
A revolutionary new wheelchair – effortlessly propelled by foot pedals, made of lightweight aluminum, folds to fit easily in the trunk of a car. Gives you mobility without atrophy, providing safe, comfortable freedom, while increasing circulation, strength, and ability. [Note: The company that manufactured these chairs appears to have gone out-of-business. It is uncertain whether this item still available through any other sources.]


Michiana EDNF website designed by Smack Dab Design.