| EDS Links
Ehlers-Danlos
National Foundation
The Ehlers-Danlos National Foundation (EDNF) was founded in
1985 by Nancy Hanna Rogowski. EDNF creates resources for those affected by
the connective tissue disorder Ehlers-Danlos Syndrome. They create and distribute
accurate information, provide a network of support and communication, and
foster and fund research.
Ann Arbor EDNF
Local group based in Ann Arbor, Michigan
(west of Detroit MI /
north of Toledo OH)
Overviews of Ehlers-Danlos Syndrome (EDS)
from Ehlers-Danlos National Foundation, USA:
• What is EDS?
• Types of EDS
from Ehlers-Danlos Support Group, UK:
• What is EDS?
• Types of EDS
from Ehlers-Danlos Syndrome Network, USA:
• What is EDS?
• Types of EDS
• Causes & Symptoms
from EDS Today, USA:
• Types of EDS
• Understanding Genetics
from Canadian Ehlers-Danlos Association:
• What is EDS?
• Types of EDS
• The Facts About EDS
Comprehensive Medical Reviews of EDS Types
Summary, Diagnosis, Clinical Description, Management, Genetics, etc.
Ehlers-Danlos Syndrome, Classic Type
by Richard Wenstrup, MD, & Anne De Paepe, MD, PhD
Ehlers-Danlos Syndrome, Hypermobility Type
by Howard P Levy, MD, PhD
Ehlers-Danlos Syndrome, Vascular Type
by Melanie G Pepin, MS, CGC, & Peter H Byers, MD
Ehlers-Danlos Syndrome, Kyphoscoliotic Form
by Heather N Yeowell, PhD, & Beat Steinmann, MD
Additional Information About EDS
from Ehlers-Danlos National Foundation, USA:
• Dealing with Doctor/Patient Relationships
from Ehlers-Danlos Support Group, UK:
• Visiting a Geneticist
• Pain Control
• Coping with Daily Activities
• Special Education Needs
from Ehlers-Danlos Syndrome Network, USA:
• Myths & Facts
• Coping & Support / Help Your Child Cope
from EDS Today, USA:
• Assistive Services
from Canadian Ehlers-Danlos Association:
• Information Page
• The Seven Stages of Acceptance
Medical Devices
 Silver
Ring Splint Company
Attractive splints, designed to effectively control hyperextension
and support instability of finger joints in patients with EDS, arthritis,
and other chronic conditions.
|
 EZ
Chair
A revolutionary new wheelchair – effortlessly propelled
by foot pedals, made of lightweight aluminum, folds to fit easily in the
trunk of a car. Gives you mobility without atrophy, providing safe, comfortable
freedom, while increasing circulation, strength, and ability.
[Note: The company that manufactured these chairs appears to have gone out-of-business.
It is uncertain whether this item still available through any other sources.]
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Michiana EDNF website designed by Smack
Dab Design.
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