Welcome!

Michiana EDNF is a branch of the Ehlers-Danlos National Foundation. We provide support for individuals and families from Michigan and Indiana with Ehlers-Danlos Syndrome.

Ehlers-Danlos Syndrome is a group of genetic connective tissue disorders, characterized by joint hypermobility, skin extensibility, and tissue fragility. Individuals with EDS have a defect in their connective tissue, the tissue which provides support to many body parts such as the skin, muscles, ligaments, blood vessels, and internal organs. The fragile tissues and unstable joints found in EDS are the result of faulty collagen. Collagen is a protein that acts as a "glue" in the body, adding strength and elasticity to connective tissue. For further information about EDS, you can find many articles and informative websites through our EDS links page.

Our branch is based in South Bend, Indiana, five miles south of the Michigan border. We have several meetings each year, which give us an opportunity to get to know others with EDS, and learn from each other about living with EDS. We also participate in events to educate our community about EDS, and we have fund-raisers to help support our local branch, as well as EDNF as a whole. Children are always welcome at our meetings. Please visit our EDNF Local Groups Directory page for information on upcoming Michiana EDNF branch meetings.

Michiana EDNF Officersmeet them!
Pam Malenfant, President
Mark Lavallee, M.D., Vice President
   
Dick Malenfant, Treasurer
Erin Janicki, Secretary
To learn more about Ehlers-Danlos
Syndrome or our Foundation
,
please contact the EDNF National Office:
EDNF National Office
phone:    (213) 368-3800
e-mail:   staff@ednf.org
website:   www.ednf.org
If you are interested in the Michiana EDNF local group,
please contact Pam:
  Michiana EDNF
phone:    (269) 429-8110
e-mail:   michianaednf@gmail.com
website:   www.michianaednf.org
Other EDNF local group serving Michigan:
Ann Arbor EDNF
Ann Arbor, Michigan
(west of Detroit MI / north of Toledo OH)
please contact Katie:
  Ann Arbor EDNF
phone:    (734) 741-5288
e-mail:   info@a2-ednf.org
website:   www.a2-ednf.org